The Addison Patients Community of Türkiye is a volunteer patient community, open to people with Addison’s disease and their families, founded to help Turkish Addison’s patients in Türkiye and around the world stay in touch and share information. We have been active since October 2010.
As Addison’s patients, we have to live our whole lives around this condition. Our aim as a community is to make life easier for fellow patients and improve our quality of life by minimising the negative effects of the condition.
Our goals
- To minimise the problems people with Addison’s disease face in daily life,
- To raise patients’ awareness of their own condition,
- To build public awareness of Addison’s disease,
- To follow up on patients’ rights and social rights,
- To bring all Addison’s patients under one roof and become an association.
We have no commercial ties with any institution or organisation and no profit motive. Our pages and website are run purely as a social responsibility project, with no financial interest.
Our founder
Our founder, Ahmet Gümüştekin, is himself an Addison’s patient. He started this work as a social responsibility project to close the information gap about Addison’s disease among patients and the public.
Our journey
| Date | What happened |
|---|---|
| October 2010 | The Addison Patients Communication Group on Facebook brought Addison’s patients in Türkiye together under one roof for the first time. Many members learned there about disability reports, early retirement and other social rights. |
| May 2015 | addisonturkiye.com was launched so that scattered resources would be easier to find. |
| November 2015 | The 1st İstanbul Meet-up (Üsküdar) and the 1st Ankara Meet-up (Kızılay, 9 participants) took place. |
| Spring 2016 | The 2nd İstanbul Meet-up was held at Cankurtaran Teachers’ House with 10 participants. |
| 2016 | Information images about the condition were prepared (The Condition). |
| Today | In our single WhatsApp group, joined by controlled registration and run under our group rules, patients and families support each other. |
At our meet-ups, the impact of the condition on our lives, treatment experiences, disability rights and practical solutions were shared in a warm, friendly atmosphere, and lasting friendships were formed.
Get in touch
Use our Contact page for questions, or apply to our WhatsApp group. Stay healthy.
Coming soon: association status and meet-up photos (after KVKK consent checks).
Medical disclaimer: The information on this site is prepared by a patient community for general information only. Always consult your own doctor (endocrinologist) about diagnosis, treatment or any dose change. In an emergency in Türkiye, call 112.