Date: 2026-05-29 (updated 2026-06-02)
Source: ADSHG — https://www.addisonsdisease.org.uk/news/research-study-2026-adrenal-crisis
What happened?
ADSHG, with City St George’s University of London, announced a new survey and interview study under “The Real Story: Adrenal Crisis Management in the UK”. It aims to understand experiences of preventing and managing adrenal crisis, recognising symptoms, and seeking emergency care.
What is this about? (short)
A 2024 national survey of 1,789 adults found that nearly 1 in 3 had a crisis in the past year; only 18% could self-inject despite having kits; and those who self-injected were less likely to be admitted. The new study digs into remaining gaps in real-world emergency pathways.
Study summary
There is an anonymous online questionnaire (about 20–25 minutes) and a limited number of 1:1 interviews. The target is at least 1,000 eligible responses. Ethics approval: City St George’s [ETH2425-1801]. Research lead: Dr Sofia Llahana (ADSHG Clinical Advisory Panel).
Participation is currently open only to adults who receive medical care in the UK. A separate international survey is planned for early summer for people outside the UK.
Who is it for?
Adults in the UK with adrenal insufficiency on glucocorticoid replacement. People who have never had a crisis can still take the questionnaire (prevention matters). Interviews require a crisis in the last two years.
Access / country context
Survey and registration links are on the ADSHG news page. This is experience and care-pathway research, not a treatment trial. Patients in Türkiye are not eligible for this UK survey.
What it means for patients in Türkiye
This is not a direct call to take part. It shows adrenal crisis remains common and serious, and that education and early action are research priorities. Review your own crisis plan with your doctor; watch charity channels if an international survey opens later.
Warning: This is a news summary, not dose or treatment advice. Ask your endocrinologist.
Medical disclaimer: Information on this site is prepared by a patient community for general awareness; for diagnosis, treatment or dose changes always consult your own doctor (endocrinologist). In an emergency call your local emergency number.